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COMMITTEE ON GOVERNMENT OPERATIONS

JOHN CONYERS, JR., Michigan, Chairman CARDISS COLLINS, Illinois

FRANK HORTON, New York GLENN ENGLISH, Oklahoma

ROBERT S. WALKER, Pennsylvania HENRY A. WAXMAN, California

WILLIAM F. CLINGER, JR., Pennsylvania TED WEISS, New York

AL MCCANDLESS, California MIKE SYNAR, Oklahoma

HOWARD C. NIELSON, Utah STEPHEN L. NEAL, North Carolina

DONALD E. "BUZ” LUKENS, Ohio DOUG BARNARD, JR., Georgia

J. DENNIS HASTERT, Illinois BARNEY FRANK, Massachusetts

JON L. KYL, Arizona TOM LANTOS, California

CHRISTOPHER SHAYS, Connecticut ROBERT E. WISE, JR., West Virginia PETER SMITH, Vermont BARBARA BOXER, California

STEVEN SCHIFF, New Mexico MAJOR R. OWENS, New York

CHUCK DOUGLAS, New Hampshire
EDOLPHUS TOWNS, New York

LARKIN I. SMITH, Mississippi
JOHN M. SPRATT, JR., South Carolina C. CHRISTOPHER COX, California
JOE KOLTER, Pennsylvania
BEN ERDREICH, Alabama
GERALD D. KLECZKA, Wisconsin
ALBERT G. BUSTAMANTE, Texas
MATTHEW G. MARTINEZ, California
LOUISE M. SLAUGHTER, New York
NANCY PELOSI, California
DONALD M. PAYNE, New Jersey
JIM BATES, California

JULIAN EPSTEIN, Staff Director
DONALD W. UPSON, Minority Staff Director

HUMAN RESOURCES AND INTERGOVERNMENTAL RELATIONS SUBCOMMITTEE

TED WEISS, New York, Chairman HENRY A. WAXMAN, California

LARKIN I. SMITH, Mississippi NANCY PELOSI, California

PETER SMITH, Vermont DONALD M. PAYNE, New Jersey

Ex OFFICIO
JOHN CONYERS, JR., Michigan

FRANK HORTON, New York
JAMES R. GOTTLIEB, Staff Director
PATRICIA S. FLEMING, Professional Staff Member

PAMELA H. WELCH, Clerk
WAYNE CIMONS, Minority Professional Staff

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Hearing held on:

March 27, 1989.

April 24, 1989

Statement of:

Allen, Theodore J., M.S.W., central region regional administrator, Divi-

sion of Youth and Family Services, New Jersey Department of Human

Services....

Canady, Renee, AIDS coordinator, Michigan Department of Corrections ....

Cheaney, Darlene Cox, associate administrator for nursing services, Uni-

versity of Medicine and Dentistry of New Jersey-University Hospital .....

Coonce, William, special agent in charge, Drug Enforcement Administra-

tion, Detroit office

Coye, Molly Joel, M.D., commissioner, New Jersey Department of Health,

accompanied by Robert Hummel, assistant commissioner, Division of

AIDS Prevention and Control .......

Crane, Lawrence R., M.D., FACP, associate professor of medicine, division

of infectious diseases, Wayne State University School of Medicine ......

Duncan, Ted W., Ph.D, executive director, Wellness House of Michigan ....

Ellis, Lewis E., assistant superintendent, department of student services,

Detroit public schools

Fisher, Evelyn, M.D., senior staff physician, division of infectious dis-

eases, Henry Ford Hospital

Gaines, George, deputy director, Detroit Health Department

Givens, Donna L., assistant director, Community Health Awareness

Group (C-HAG)...

Henderson, Erma, chairwoman, Detroit City Council

Kerr, Diana L., M.S., program director, Coordinated Community AIDS

Program for Southeastern Michigan, Greater Detroit Area Health

Council, Inc..

King, Ruth E.G., project officer, AIDS Information and Education Pro-

gram, Association of Black Psychologists

Lampl, Jeffrey, C.S.W., executive director, Hyacinth Foundation

Lipshutz, Judith A., coordinator, AIDS-related Communication Coalition

and AIDS Services Coalition, United Community Services

Mahaffey, MaryAnn, Detroit council person

Merritt, Conley, administrative assistant, FRIENDS: Persons with AIDS/

ARC/HIV + Alliance.

Mesa, Virginia, M.D., M.P.H., medical director, Detroit Health Depart-

ment

Muhammad, Anisa, daughter of a person with AIDS.

Noble, Gary R., M.D., Deputy Director (HIV), Centers for Disease Control,

Public Health Service, U.S. Department of Health and Human Services

Peoples, John, member, Detroit City Council.

Piontkowsky, David, attorney, Ferndale, MI.

Pope, Randall, chief, Special Office on AIDS Prevention, Center for

Health Promotion, Michigan Department of Public Health.

Scherer, Carol L., senior analyst, Michigan Insurance Bureau

Scott, Martha, mayor, Highland Park, MI ....

Selner, Charles A., program manager, FRIENDS: Persons with AIDS/

ARC/HIV + Alliance.

Struggs, Callie Foster, director, Department of Health and Human Serv-

ices, Newark NJ..

286
206

167

152
305

Statement of-Continued

Page Talley, Rick, director, drug treatment program, city of Detroit Neighborhood Services Department ..

191 Tucker, Donald, councilman at large, Newark, NJ.

47 Weiss, Hon. Ted, a Representative in Congress from the State of New

York, and chairman, Human Resources and Intergovernmental Rela-
tions Subcommittee: Opening statements..

1, 135 Winans, Derek T., chairperson, Newark Community Project for People With AIDS

85 Letters, statements, etc., submitted for the record by:

Allen, Theodore J., M.S.W., central region regional administrator, Divi

sion of Youth and Family Services, New Jersey Department of Human
Services: Prepared statement....

28-34 Cheaney, Darlene Cox, associate administrator for nursing services, Uni

versity of Medicine and Dentistry of New Jersey-University Hospital:
Prepared statement...

.111-118 Coye, Molly Joel, M.D., commissioner, New Jersey Department of Health: Prepared statement...

13-23 Crane, Lawrence R., M.D., FACP, associate professor of medicine, division

of infectious diseases, Wayne State University School of Medicine: Pre-
pared statement.

234-235 Duncan, Ted W., Ph.D, executive director, Wellness House of Michigan: Prepared statement....

.297-299 Ellis, Lewis E., assistant superintendent, department of student services,

Detroit public schools: Policies and guidelines regarding prevention and
control of communicable diseases among Detroit public schools students
and employees.

...147-150 Givens, Donna L., assistant director, Community Health Awareness Group (C-HAG): Prepared statement....

282-285 Kerr, Diana L., M.S., program director, Coordinated Community AIDS

Program for Southeastern Michigan, Greater Detroit Area Health
Council, Inc.:
List of black grassroots community organizations.

312-314 Prepared statement..

273-275 King, Ruth E.G., project officer, AIDS Information and Education Pro

gram, Association of Black Psychologists: Prepared statement 243-261 Lampl, Jeffrey, C.S.W., executive director, Hyacinth Foundation: Prepared statement

..122-124 Lipshutz, Judith A., coordinator, AIDS-related Communication Coalition

and AIDS Services Coalition, United Community Services: Prepared
statement

290-294 Mesa, Virginia, M.D., M.P.H., medical director, Detroit Health Department: Prepared statement.

...164-166 Noble, Gary R., M.D., Deputy Director (HIV), Centers for Disease Control,

Public Health Service, U.S. Department of Health and Human Serv-
ices:
Correspondence, with attachments ....

.221-229 Involvement of Federal coordinating committee..

209 Prepared statement...

.170-175 Pope, Randall, chief, Special Office on AIDS Prevention, Center for

Health Promotion, Michigan Department of Public Health: Prepared
statement.

..181-190 Scherer, Carol L., senior analyst, Michigan Insurance Bureau: Prepared statement.

302-304 Struggs, Callie Foster, director, Department of Health and Human Services, Newark NJ: Prepared statement.....

54-73 Talley, Rick, director, drug treatment program, city of Detroit Neighborhood Services Department: Prepared Statement

.194-201 Winans, Derek T., chairperson, Newark Community Project for People With AIDS: Prepared statement

91-106

APPENDIX

Material submitted for the hearing record ......

319

THE AIDS EPIDEMIC IN NEWARK AND DETROIT

MONDAY, MARCH 27, 1989

HOUSE OF REPRESENTATIVES,

HUMAN RESOURCES AND
INTERGOVERNMENTAL RELATIONS SUBCOMMITTEE
OF THE COMMITTEE ON GOVERNMENT OPERATIONS,

Newark, NJ. The subcommittee met, pursuant to notice, at 10 a.m., in Lecture Hall 2131, Essex County College, 303 University Avenue, Newark, NJ, Hon. Ted Weiss (chairman of the subcommittee) presiding.

Present: Representatives Ted Weiss and Donald M. Payne.
Also present: Representative John Conyers, Jr.
Staff present: Patricia S. Fleming, professional staff member.

OPENING STATEMENT OF CHAIRMAN WEISS Mr. WEISS. The Human Resources and Intergovernmental Relations Subcommittee of the Government Operations Committee of the U.S. House of Representatives is now in session.

We are pleased to ask Dr. Yamba to give us a word of welcome to this beautiful facility. Dr. Yamba.

Dr. YAMBA. Thank you very much. Let me welcome all of you on behalf of the entire Essex County community to our facilities today for this most important hearing. Certainly the topic at hand is something that has concerned all of us for a very long time and we are very pleased that the Congress of the United States has taken it upon itself, through our own Congressman Donald Payne, to come to Newark to hear firsthand from people who have been living with this situation for quite some time.

So, on behalf of the entire Essex County College community, I say once again, welcome. We hope that this hearing will not only be enlightening to all of us but certainly help dramatize the concerns that have plagued all of us for quite some time.

Thank you very much and have a productive hearing.

Mr. Weiss. Thank you, Dr. Yamba. We are grateful to you and to the other staff and professionals here at Essex County Community College.

Let me, at the outset, express my appreciation to my distmguished colleague, Congressman Donald Payne, who is a new member of the subcommittee in the Congress, for requesting that this hearing on AIDS be held in his district in Newark and for helping to organize a stellar group of witnesses. Mr. Payne, has already made his mark in Congress on the issues under the subcommittee's jurisdiction. He also has longstanding concerns about the AIDS crisis, which have brought us to Newark today.

(1)

I am also happy to welcome our distinguished chairman of the Government Operations Committee, Mr. John Conyers.

This subcommittee first looked into the AIDS epidemic in August 1983, when fewer than 2,000 cases and 730 deaths had been recorded by the Centers for Disease Control. At the end of February, of this year, our worst projections had come true. The CDC reported over 88,000 AIDS cases and 50,000 deaths.

Today, 40,000 Americans with AIDS require medical care. By 1992, a total of 365,000 persons are expected to have suffered from AIDS. Of those, close to 200,000 persons will need medical care during that year. This is five times the number that we are caring for today.

Each death from AIDS represents a wasted human life, a man, a woman, a child. As the number of persons stricken increases, so does the need for better therapies, better health and social services, and better prevention strategies.

Last month, this subcommittee held 2 days of hearings on HIV infection and AIDS in children. We heard from a group of outstanding care providers, who presented startling information. These witnesses represent some of the best pediatric AIDS programs in the country, two of them from New Jersey, and yet they spoke with despair in their voices. They spoke of limited resources stretched thin; they spoke of temporary funding for their programs, and of writing proposals weekend after weekend, trying to get funding to hold on to the programs that they run.

They testified that they do not know how they will care for the increased number of patients anticipated in the next few years and beyond. Their problems are echoed in the looming crisis in the care for adults with AIDS. Here in Newark, you are facing a maelstrom of disease which could take the lives of more than 100,000 people in a few short years.

We will hear testimony today from some of the leaders in the war against this disease at the State, city, and community level. No one knows better than you on the front lines what must be done to provide compassionate, comprehensive care and effective education in prevention strategies. No one knows better what resources are needed to accomplish these objectives.

We are here to listen to you and to learn more about alternatives that seem to be working and resources that must be supplied. We will carry your ideas and requests for assistance back to Washington with us and try once again to convince the administration to provide you with the means to continue your programs that are working and begin new ones that show promise.

Before I call on our first witness, let me recognize our very distinguished host and colleague, Congressman Donald Payne. Congressman Payne.

Mr. PAYNE. Thank you, very much, Mr. Chairman. Let me express my deep appreciation to you for agreeing to hold this hearing in Newark today so that the voice of our community will be heard in Washington. Your leadership in the battle against AIDS has been outstanding. We thank you for your concern for people with AIDS, their families and those who provide them with care.

We are also very fortunate to have with us today, the distinguished chairman of the Government Operations Committee and a

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